tag:blogger.com,1999:blog-4961223188238004720.post6234174639310598374..comments2023-09-25T05:24:27.910-05:00Comments on Living with Mastocytosis: Some optimism...Unknownnoreply@blogger.comBlogger10125tag:blogger.com,1999:blog-4961223188238004720.post-1104484959869551002020-10-02T23:33:29.028-05:002020-10-02T23:33:29.028-05:00I'M TOTALLY FREE FROM HEPATITIS B. FOR OVER YE...I'M TOTALLY FREE FROM HEPATITIS B. FOR OVER YEARS LIVING WITH IT<br /> I’m Stephenie Brown, i was diagnosed with Hepatitis B 3 years ago, i lived in pain with the knowledge that i wasn’t going to ever be well again i contacted so many herbal doctors about herbs to cure me and ended up spending some amount of money but i never got better i was determined to get my lifestyle back and to be able to do things am restricted from doing so one day i saw a lady’s post on how Herbalist Dr. JAMES cured her from Hiv virus with his herbal medicine. I contacted the same Doctor through his email....drjamesherbalmix@gmail.com....we spoke, i told him all that i was going through and he told me not to worry that everything will be more better again so he prepared a herbal medicine and send it to me through DHL courier company and told me the dosage,after 13 days of completing the herbal medicine,i was totally free from Hepatitis,so I went to see a doctor for a blood test ,After taking a sample of my blood for the test the result came out negative,i just can’t deny that i’m the most happiest woman on earth this very moment ,i’m so happy and thanks to Herbalist Doctor JAMES<br />He also told me he cures diseases such as Melanoma ,Cancer,Weak Erection,Wart Remover,Hpv,Herpes,Fibromyalgia,Hiv,Hepatitis b,Liver/Kidney Inflammatory,Epilepsy,Infertility,Fibroid,Diabetes,Dercum,Copd,Back pain,Nephrotic syndrome,<br /> AND MORE contact him on<br />Email..... DRJAMESHERBALMIX@GMAIL.COMStephenie Brownhttps://www.blogger.com/profile/01272816128209652409noreply@blogger.comtag:blogger.com,1999:blog-4961223188238004720.post-51660078298237469382013-01-23T12:18:48.807-05:002013-01-23T12:18:48.807-05:00Hi BlueKat,
I stumbled upon your wonderful blog t...Hi BlueKat,<br /><br />I stumbled upon your wonderful blog this morning while trying to find out if my insurance will cover my Gastrocrom. <br /><br />I was recently diagnosed with Mast Cell Activation Disorder - I supposedly do not have MASTO, but I exhibit what I would call "partial anaphylaxis" at any given time. In a nutshell: It was explained I do not produce an overabundance of mast cells, I have an adequate number of cells, they just fire randomly; basically whenever they feel like it. I get fast heart palps, and used to think I was having a major panic attack but come to find out it was a form of anaphylaxis. I get hives all over and get the feeling like I have to run to the bathroom. Very strange.<br /><br />Anyhow, the Gastrocrom has helped me tremendously. I had to stop exercising due to reason I'm allergic to core body temp changes and the medicine actually assisted me in exercising again - it was awesome.<br /><br />I lost my insurance coverage and was just assisted today via the state but have no idea if they will actually cover this med. It has been the only help and salvation I've had in over 3 years.<br /><br />Thank you for posting your journey. It is so comforting to know we are in this together, albeit not a good scenerio from any angle. <br /><br />I wish you all the very best and hope your illness is under control and managed to the point where you will regain quality of life.<br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4961223188238004720.post-87465538109566379132007-07-01T00:57:00.000-05:002007-07-01T00:57:00.000-05:00ViktoriaI've taken tramadol for the pain and it do...Viktoria<BR/><BR/>I've taken tramadol for the pain and it does help alot.BlueKathttps://www.blogger.com/profile/02458974992825074672noreply@blogger.comtag:blogger.com,1999:blog-4961223188238004720.post-63064549861726754472007-07-01T00:49:00.000-05:002007-07-01T00:49:00.000-05:00well thank you much for the advice.....i will take...well thank you much for the advice.....i will take this into consideration....anyone try taking tramadol...for pain? i have read that this does not effect the mast cells ...y all take care....will check back soon....ViktoriaUnknownhttps://www.blogger.com/profile/14275878497480615806noreply@blogger.comtag:blogger.com,1999:blog-4961223188238004720.post-75958383773823469782007-06-21T21:21:00.000-05:002007-06-21T21:21:00.000-05:00Anonymous... I have heard of some masto patients b...Anonymous... I have heard of some masto patients being treated with interferon. I'm so glad it's working for you.<BR/><BR/>cpap... thanks so much. I can use all the prayers I can get.<BR/><BR/>Viktoria...thank you for sharing your story. Please visit often. Have you tried taking Doxepin HCI (Sinequin)? It's a tricyclic anti-depressant with both histamine-1 and histamine-2 blocking effects and is also used to alleviate chronic pain. After I read that it helped some people, my doc put me on 10 mg of it. I noticed in a very short time that I wasn't having the type of joint and bone pain I had been having but I didn't know that it could be the Doxepin until I read an article in <BR/>The Mastocytosis Chronicles, the newsletter of The Mastocytosis Society. It was about Dr. Theoharides speech at the University of SC. The above info about Doxepin is from that article. The doc has since raised my dosage to 25 mg. It also helps my frame of mind greatly.<BR/><BR/>If it doesn't help, you might try Cymbalta. It also really helped my body pain but, for me, it tends to really upset my stomach but it might not have that effect on you.<BR/><BR/>Good luck, hon, and please stay in touch and let us know how you're doing. You're in our prayers and thoughts.BlueKathttps://www.blogger.com/profile/02458974992825074672noreply@blogger.comtag:blogger.com,1999:blog-4961223188238004720.post-22187304866714306892007-06-21T04:18:00.000-05:002007-06-21T04:18:00.000-05:00Hello Matt & everyone else........My name is Vikto...Hello Matt & everyone else.....<BR/>...<BR/>My name is Viktoria..I am 41 years old.who resides in Southern Missouri.i have battled with MASTO.....for 3 years....was just diagnosed with it recently..i knew something was wrong in the 3 years but just did not know what it is.....I know abt the ill feeling and no energy and fatigue.......and the aches and pains in the joints....the swollen eyes for 3 years ...and swollen face...my hubbys family thought it was all in my head and nothing was wrong with me....that really effected me emotionally....we moved out of state and i do not try to bring negativeness in my life is not good for the illness....so i wish not to associate with people who do not understand or care to understand this illness....but just judge me....i am taking the Gastrocrom which has helped my swelling but not 100% ...I GET HORRIBLE PAIN IN MY JOINTS....i can hardly stand it....it like i am losing use of my arms because they hurt so badly just moving them....i feel lighted headed many times of the day.....like i am going to pass out.....i am on 4 tabs...a day 50 mg's hydroxzine.....and the singular...also ranitidine....i hope i will feel better soon just dont know...and i wish everyone else on this board the best of luck....I am glad i found this site....and i am not in this alone....thank you all for being here.....GOD BLESS Viktoria<BR/><BR/>viktoria66@aol.comUnknownhttps://www.blogger.com/profile/14275878497480615806noreply@blogger.comtag:blogger.com,1999:blog-4961223188238004720.post-2127829049366361562007-06-15T12:31:00.000-05:002007-06-15T12:31:00.000-05:00Hi, i just wanted to let you know that I really ap...Hi, i just wanted to let you know that I really appreciate the fact that you can take the time to write about your experiences, even despite the pain you must be in. We are all praying for you, and hope you feel better.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4961223188238004720.post-65381884534273401202007-06-08T14:54:00.000-05:002007-06-08T14:54:00.000-05:00i ALSO HAVE SYSTEMATIC MASTOCYTOSIS. i AM 38 YEARS...i ALSO HAVE SYSTEMATIC MASTOCYTOSIS. i AM 38 YEARS OLD. i AM ON INTERFERON INJECTIONS 3XS A WEEK. i HAVE HAD 4 BONE MARROW BIOPSIES, ABOUT 5 BLOOD TRANSFUSIONS DUE TO IT MAKING ME ANEMIC,I ALSO TAKE A ANTI DEPRESSANT AND PAIN MEDS THIS COMBO OF MEDS HAS MADE LIFE LIVEABLE, I CANNOT WORK, BUT AM ABLE TO FEEL SOME RELIEF.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4961223188238004720.post-57619015776729744782007-06-04T21:59:00.000-05:002007-06-04T21:59:00.000-05:00Hi Matt!Thanks for your comment. I try to be stro...Hi Matt!<BR/><BR/>Thanks for your comment. I try to be strong but I've been weak as a kitten today.<BR/><BR/>I first started exhibiting symptoms 2 years ago when I was 48. I just turned 50, which is kind of unreal to me.<BR/><BR/>Please write more. I would love to open up the blog to guest posters who could post as often or as infrequently as they liked. It's difficult for me to keep up with it very regularly these days. Let me know if you might be interested. <BR/><BR/>I am so tired of being sick. I'm sick of being sick. I try to hold out for those few days scattered here and there when I feel almost normal. Since onset, I've only had about 5 weeks total of feeling pretty well, though I understand from some posters that it is possible to get on an even keel and feel good with proper treatment, so I hope that will someday be my reality.<BR/><BR/>Take care, Matt, and stay in touch.BlueKathttps://www.blogger.com/profile/02458974992825074672noreply@blogger.comtag:blogger.com,1999:blog-4961223188238004720.post-27769324909719659272007-06-04T16:31:00.000-05:002007-06-04T16:31:00.000-05:00hi i just wanted to let you know that you are stro...hi i just wanted to let you know that you are strong in writing these and i thank you for that. i also have mastocytosis and a lot of your symptoms are so real to me. if you don't mind me asking how old are you? I am a 33 year old male from illinois and just found out in dec. and jan of this year about masto. If you get this i will talk more but will wait to see if this goes through. thanks for your time.<BR/>mattAnonymousnoreply@blogger.com