Extra Crud

A little over a week ago, at my little nephew's 4th birthday party, I unthinkingly sat across from one of my dearly loved nieces who had bronchitis. As I've mentioned before, I've had over half a dozen intensive rounds of Prednisone which weakens the immune system, so later, my mom pointed out that that had probably been a very bad idea for me and that she had tried to get me to sit somewhere else. Me, being a virtual mental incompetent with this disease, did not get the hint.

So, once I got to my mom's place, I thought it would be a great idea to gargle with Listerine, which I hadn't used in years. (I do occasionally use Scope.)

Badder idea.

I quickly swished a bit in my mouth and spit it out, and took a bit more in my mouth. In those 2 seconds, maybe, it was enough to cause my throat to slam shut and my head and chest to be filled with mucus. I had to spew it out of my mouth and ran to my purse, unable to speak or breathe, gesturing wildly to mom.

I was able to get some of my Albuterol inhaler in me enough to open my throat enough to swallow a couple of Benadryl between severe bouts of coughing. Eventually, I was able to get down a hydroxyzine (H1 inhibitor), a couple of ranitidine (H2 inhibitor), and a Phenavent (a molecular equivalent of epinephrine and ephedrine).

I had no Epi-pen as I haven't yet been able to swing the $90 bucks for it, having no insurance.

After gagging and coughing and gasping and near vomiting for about 10 minutes, I coughed up/vomited up an entire handful of mucus.

AN ENTIRE HANDFUL!! I swear, it was about 3/4 of a cup! It was the most revolting experience in my life, that I can recall.

I don't know if this was anaphalaxis or not, but I seriously thought I was going to die for about 10 or 15 minutes.

Gradually, my system calmed down, but for several days I was a good bit sicker than usual, especially wracked by the physical pain and exhaustion.

Now, I am apparently suffering from a cold on top of the general misery I live with daily. About two days ago, my head became stopped up non-stop, despite my usual use of the nasal spray which is the only remedy that allows me to breathe between blowing my nose, which is a constant. My doctor says to just keep using it since it's the only thing that helps. I mean, when you're shoveling in antihistamines like Allegra, and hydroxyzine, (and whatever else is available sometimes) and your nose still won't quit running and you still can't inhale through your nose, you do whatever works.

So, last night I started back on the Phenavent regularly which I've been hoarding for use during my worst times. It's helping with the congestion which is now filling my chest, also. The sneezing, coughing, watery eyes, and back and chest pain I'm just living through. The usual myalgia is kicking up a little more strangely than usual. The Relafen is helping, then not, then is. What the hell.

It's a little hard to tell where the virus picks up and the masto leaves off.

Brain Fog

I either took another Relafen an hour ago, or I didn't. I remember thinking about it. I remember picking up the bottle. I don't remember whether I took one or not. I was sitting right here when then. I haven't done anything else in between.

This is how your brain fogs on mastocytosis.

Oh yeah. I could analyze complex computer programs and write specifications.

I've got to figure out what to do, somehow. Maybe I should see a lawyer and see if he can get me my medical benefits. How I could afford to pay him, I have no idea.

Myalgia

I felt simply horrible yesterday, but feeling a little better today except that the myalgia has set in badly.

I wish I could take an NSAID, but I dare not. The doctor gave me Relafen which I'll probably take in a bit to see if it helps. Doesn't usually. Not sure if its an NSAID or not. Got it before the diagnosis. I've taken Tylenol but this is some major pain.

I looked up Relafen, and it is an NSAID. I've taken it before though and didn't notice a problem. I never know what will happen.

But, I'm hurting badly so I may chance it. Stomach is still upset, but what the hell.

I need to call the mastocytosis society and see if they can help. Maybe Monday. Still have tons of paperwork to do, both for Social Security and PPA. Hopefully, I can get at least some meds at an affordable price through them.

The worst thing to go without, besides the Gastrocrom, is the Wellbutrin an now the doctor wants to add another....not Paxil, the other one, I can't remember right now.

I've been taking Wellbutrin for years but could go off for quite awhile before I really missed it. Not now.

Damn, this is such a drag.